Why does each PALS need to complete the ALS Registry in the next 3 days?
Published: Fri, 07/12/24
Updated: Fri, 07/12/24
Healing ALS
Community Meetings 2024
See below for why it is important that you complete you June Registry check-in in the next 3 days at ALSRegistry.org.
Reminder, no meetings on Sunday July 14 or Monday July 15.
Why Complete the Registry Each Month?
It will help you keep track of all of your supplements and healing protocols
Seeing others protocols will give you ideas that may work for you
You can easily print out or email everything you are doing for your own records and for your doctors
Track your history for
you and your doctors to analyze what is working
It will inspire you to stay on track and make adjustments when needed
In step 6 Journal Entries you can easily see your history and notes on the effectiveness of treatments
It will help the Healing ALS Medical Team and ALS researchers find out which protocols are most effective for ALS
The Healing ALS Medical Team and ALS researchers will be able to
publish peer reviewed articles about protocols which are working which will have an impact on the entire ALS Community including neurologists
Once we have 500 verified ALS patients in the registry, you will be able to query what others are doing
Go to the ALSRegistry.org and enter your email address and create a password
Read the “Terms of Service” and click the box to agree to them
Sign the document and click “Sign
Up”
Create your profile by clicking “Update Profile” and enter your information
Begin your reporting by starting with Step 1 of the registry and work your way through
If there are supplements, medications, brands that you need to have added to the options, please email HealingALSRegistry@gmail.com
Summer schedule. Enjoy the weekend off. No meetings on Sunday July 14 & Monday July 15. Plan something fun to do with family, friends, neighbors or on your own.
